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What is Batten Disease?

Batten disease is an ultra rare fatal genetic disease which affects the nervous system, causing progressive neurological impairment. It’s currently incurable, so we’re trying to raise awareness and funding for vital research.

News and blog

Brineura (Cerliponase Alfa) approved for NHS funding

Brineura approved for NHS funding

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Ollie features in new Wellchild ‘Bad Day’ single video!

Ollie features in new Wellchild ‘Bad Day’ single video!

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Over 2 Million Hits on Ollie’s Video

Over 2 Million Hits on Ollie’s Video

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Ollie gives Prince Harry a Hug at WellChild awards

Ollie gives Prince Harry a Hug at WellChild awards

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Film About Ollie Brings Cheers and Celebration at Well Child Awards

Cheers and Celebration at Well Child Awards

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